Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awarenessJust Giving Link - Our Chosen CharityDONATE HERE

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About UNIQUE

  

Unique is a small charity providing much needed help and information to families with a family member with a rare chromosome disorder. 

Each year many hundreds of babies are born with these disorders which are caused by them having parts of one or more of their chromosomes missing, added on or rearranged.  As many as one in 200 babies is affected. They are often severly disabled, unable to walk or talk and this can put lots of stress and strain on their families. Although rare, collectively the disorders are more common than even Down’s Syndrome but despite that doctors often have very little knowledge about them, leaving parents feeling isolated and confused.

This is where Unique comes in! We are able to listen to their parents & carers, answer their questions and give them the help they need. We have a telephone and email helpline, have published over 150 guides to specific disorders run family weekends to increase knowledge and understanding and have our family matching service brings people together for support.

New technology being rolled out across the NHS means lots more chromosome disorders are being discovered all the time. More families than ever are receiving diagnoses and this means that demand for our services is increasing very rapidly. That's why we need your help. We run very economically, meaning more money raised goes direct to helping families when they need it most.

  

Fundraising Events

Each year lots of people take part in a wide variety of events to raise much needed funds for Unique.....

Firstly, If you want to take part in a national organised event to fundraise for us, we often have guaranteed places in events such as:

  • The Virgin London Marathon
  • The Great North Run
  • The Great Birmingham Run
  • The Great Edinburgh Run
  • The Bupa London 10,000
  • Royal Parks Half Marathon

We can also help you set up a sky dive or something even more extreme!

Please get in touch (contact details below) for more information.

However..... you don’t have to be a fit and athletic runner, swimmer or cyclist, there are loads of other ways you can raise funds.

Some of the things other people have done include:

  • Organise a coffee morning
  • Hold a cake sale
  • Have a dress-down day at work or school
  • Hold a music or comedy gig
  • Do a sponsored car wash
  • Have a garden party
  • Sponsored slim, silence, walk etc....

We have lots more ideas in our fundraising pack. Just click here to read it or follow the link under Support Us at the top of this page.

If you’re organising an event we can help. Where possible we provide fundraisers with a t-shirt or running vest and for events like coffee mornings and cake sales other materials such as flyers, balloons, posters etc. Please contact our co-ordinator Craig on Craig@rarechromo.org or telephone +44(0)1883 723356